Reference Database

COMMUNITY LIAISON WORKGROUP
Growing evidence indicates that intensive effort, specialized skill, and creativity are needed to recruit and retain older minority research participants. To these ends, the CLW creates and maintains relationships with diverse community-based organizations to develop subject pools for RCMAR research involvement.

RECRUITMENT & RETENTION REFERENCE DATABASE

Mental Health Research
  • Arean PA, Alvidrez J, et al. (2003). "Recruitment and retention of older minorities in mental health services research." Gerontologist 43(1): 36-44.
  • Arean PA, Alvidrez J, Nery R, Estes C, Linkins K. Recruitment and retention of older minorities in mental health services research. Gerontologist. 2003 Feb;43(1):36-44
  • Arean PA, Gallagher-Thompson D. Issues and recommendations for the recruitment and retention of older ethnic minority adults into clinical research. Journal of Consulting and Clinical Psychology, 1996 Oct Vol 64 (5) 875-880.
Cancer Research
  • Brawley OW, Tejeda H. Minority inclusion in clinical trials issues and potential strategies. Journal of the National Cancer Institute. Monographs. (17):55-7, 1995.
  • Ford, M., Havstad, S.L., & Tilley, B.C. (2003). Recruiting older African American men to a cancer screening trial (The AAMEN Project). In L. Curry and J. Jackson, The Science of Inclusion (pp. 26-34). Washington, DC: The Gerontological Society of America.
  • Roberson NL. Clinical trial participation. Viewpoints from racial/ethnic groups. Cancer. 74(9 Suppl):2687-91, 1994 Nov 1.
RCMAR COMMUNITY LIAISON WORKGROUPS

MCUAAAR

MCUAAAR(Wayne State University) Increasing the African American communities' receptivity to research is a core aim of the center. To help accomplish this, the CLC provides health education to black elders on various health topics (e.g. hypertension, diabetes, stroke...). One of CLC's greatest accomplishments has been the use of community resources for successful recruitment of participants. These activities are also significant in that they continue to build trust in the community. The CLC also focuses on the importance of generating hypotheses and theory driven research around recruitment and retention of minority elders to health research.

An equally important part is providing content that is both relevant and compelling to seniors in the community. The Community Liaison Core of the Center is involved in disseminating research and opening channels of communication between members of the Center and the community through linking the Center’s information system with this system.

CADC

CADC (University of California, San Francisco) Measurement Core Website Recommends and provides information on measures (many in English and Spanish) of several determinants of health and health disparities including socioeconomic status, interpersonal processes of care, perceived discrimination, and culture in the medical encounter. It additionally provides annotated bibliographies on methodological topics including recruitment and measurement issues in diverse populations, developing and/or translating surveys, and locating appropriate measures for use in health disparities research.

CHIME

CHIME (University of California, Los Angeles) Measurement Core Website contains presentations on methods, several instruments in English and Spanish (including the SF-36, Patient's Views on Health Care, and Kidney Disease Quality of Life), materials on qualitative methods, and extensive links to methods resources in English and Spanish.

NERC

NERC (University of Colorado) American Indian and Alaska Native Methods and Measurement Resources contain Quality of Life and Health-related Quality of Life Measures, Mental Health Measures for depression English and non-English, reviews and summaries of measures, racial and ethnic identity, religiosity, epidemiological, measure development issues, methods of scale construction and other references.